You are not alone. And the answers are simpler than you've been told.
Clear information about epilepsy, written for real life, and a community ready to walk alongside you.
Epilepsy is common. It is treatable. And it is nothing to be ashamed of.
Around 1 in 100 people in the world live with epilepsy. In many African communities, that number is even higher, and yet most people never receive the treatment that could make their lives much easier.
We are here to change that. Through your phone, your pharmacist, your community group , we'll help you understand the condition, manage treatment, and feel supported every step of the way.
Three things you can rely on us for
Plain-language answers
No jargon, no judgement, just clear information about epilepsy, in formats that work on any phone.
A supportive community
Connect with other patients, caregivers and trained healthcare workers who understand what you're going through.
Treatment support
Reminders, guidance and reassurance to help you stay on the treatment that works for you.
What people most often ask us
What is epilepsy?
Epilepsy is a condition of the brain that causes repeated seizures. Seizures happen when there is a brief change in the normal electrical activity of the brain. Epilepsy is not contagious. It is not caused by witchcraft or curses. With the right treatment, most people with epilepsy can live full, active lives.
Can epilepsy be treated?
Yes. The most common treatment is daily medication that helps prevent seizures. For many people, treatment works very well, but it has to be taken regularly, even on days you feel fine. A pharmacist or doctor can help find the right medicine and dose for you.
What should I do if someone is having a seizure?
Stay calm. Help them lie down gently on their side. Move sharp or hard objects out of the way. Do not put anything in their mouth. Time the seizure, most last under 2 minutes. Stay with them until they are fully awake. If the seizure lasts more than 5 minutes, or another starts right after, seek medical help.
Is epilepsy a family curse?
No. Epilepsy is a medical condition, just like asthma or diabetes. It is not a punishment, a curse, or a sign of weakness. Talking about it openly helps everyone, and helps the person living with it feel less alone.
This information is general and does not replace advice from your pharmacist or doctor. If you have specific questions about your treatment, please speak to a healthcare worker you trust.
Want to be part of our community, or share your story?
We are always learning from the people we serve. If you're a patient, caregiver or community member who'd like to get involved, we'd love to hear from you.