You are not alone. And the answers are simpler than you've been told.
Clear information about epilepsy for patients, caregivers and families, with practical first aid and ways to contribute to our community work.
Epilepsy is common. It is treatable. And it is nothing to be ashamed of.
Around 1 in 100 people in the world live with epilepsy. In many African communities, that number is even higher, and yet most people never receive the treatment that could make their lives much easier.
Our current work focuses on epilepsy information, storybooks, school awareness and community-based research. Digital caregiver support and treatment-reminder tools are being developed and studied; they are not an established public service. For diagnosis, medicines or changes to treatment, speak to your own health worker.
Learn epilepsy first aid for teachers and families so you know what to do if someone has a seizure.
Information now, support in development
Epilepsy information · available now
Read our first aid guidance and children's storybooks, with information for classrooms and families.
Community participation · enquire
Contact us to share your experience or ask about current outreach and research opportunities. Availability depends on the programme and location.
Digital support · in development
Caregiver support and treatment-reminder tools are part of our research, not a public reminder or clinical-care service. Continue to follow your health worker's advice.
What people most often ask us
What is epilepsy?
Epilepsy is a condition of the brain that causes repeated seizures. Seizures happen when there is a brief change in the normal electrical activity of the brain. Epilepsy is not contagious. It is not caused by witchcraft or curses. With the right treatment, most people with epilepsy can live full, active lives.
Can epilepsy be treated?
Yes. The most common treatment is daily medication that helps prevent seizures. For many people, treatment works very well, but it has to be taken regularly, even on days you feel fine. A doctor, clinical officer, nurse or pharmacist can help find the right medicine and dose for you.
What should I do if someone is having a seizure?
Stay calm. Help them lie down gently on their side. Move sharp or hard objects out of the way. Do not put anything in their mouth. Time the seizure, most last under 2 minutes. Stay with them until they are fully awake. If the seizure lasts more than 5 minutes, or another starts right after, seek medical help.
Is epilepsy a family curse?
No. Epilepsy is a medical condition, just like asthma or diabetes. It is not a punishment, a curse, or a sign of weakness. Talking about it openly helps everyone, and helps the person living with it feel less alone.
This information is general and does not replace advice from a qualified health worker. If you have specific questions about your treatment, please speak to a healthcare worker you trust.
Want to be part of our community, or share your story?
We are always learning from the people we serve. If you're a patient, caregiver or community member who'd like to get involved, we'd love to hear from you.